A Dad’s POV on VSD

I am now 5 years into my CHD journey with my son. I am a member of a few CHD related charities and their forums on social media. One thing that keeps coming up is new parents of a CHD child reporting the same thing we went through; namely so-called professionals saying directly or indirectly by inferring, "it's your fault!!" This is just not acceptable. This is a failure by the professionals to do their job or be correctly trained. Are you one of these professionals or training to be one of these: midwife or health visitor? If yes, then this blog post is aimed directly at you! Why? Because we the parents are not to blame; you are! After our son was born he had undiagnosed tongue tie and more seriously an undiagnosed large VSD. The former would be a false positive for the latter in our case. As a result of these issues he struggled to feed, fell asleep quickly while feeding due to the effort required and lost weight or failed to gain weight accordingly. And we were regular

"Hi John, we've found something..." Those words ring around my head still. Sitting down to write this post my mind is in full depressed mode. I can't stop thinking about it. I put Verdi's Dies Irae on loud, apologise to the neighbours via FB and begin writing! Sebastian had his 6 monthly check up last week. Due to Covid19 restrictions in place there was still only one parent allowed to attend and as I had attended the last 2 this time Julie attended. I dropped them both off at the hospital and then myself and Grace came home to do some baking. Although Sebastian has been a bit more fatigued of late we'd put that down to starting school and everything around that. We didn't think for a moment there might be anything else causing it. Halfway through the baking my phone rang. It was Julie. Dr Bell wanted to talk to me. I put it on loud speaker as I wiped my hands of cake mix. "Hi John, we've found something..." Those words stabbed at me. The tun